Welcome to caring4kelli.com!

Welcome to caring4kelli.com! Our precious daughter, Kelli Denea Frazier, passed away shortly after her 3rd birthday from a degenerative genetic disease called Metachromatic Leukodystrophy (MLD). Here you will find information on MLD, Pediatric Palliative Care (the care that she received while she was ill), and Newborn Screening. Our goal is that you will be able to take something helpful away from Kelli’s journey and/or the links on this site that will help you or someone you know who is experiencing their own journey with MLD or has a terminally ill child needing Pediatric Palliative Care.

We feel extremely blessed to have had Kelli in our lives even though it was only for a short while. God has a bigger plan than we are able to see and He continues to use Kelli’s short life here on Earth to minister to others.


“I prayed for this child, and the Lord has granted me what I asked of Him.” 1st Samuel 1:27 NIV